Tilly has Dravet Syndrome, a rare genetic epilepsy which causes seizures that could kill her. Their request to Birmingham Children's Trust for respite was refused with the trust suggesting training grandparents to help, even though the family had told them that was not possible.
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（四）行政执法事项清单管理、行政执法责任确定、行政执法状况评议、行政执法责任追究等相关制度；
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